Your Guide to Pediatric Spinal Fusion Surgery – Children's Orthopaedic and Scoliosis Surgery Associates, LLP

Your Guide to Pediatric Spinal Fusion Surgery

Scheduling Your Surgery

Getting Ready for Surgery

Once you have decided to proceed with surgery, please contact one of our surgery schedulers to pick a surgery date that is best for you and your family.

Once a surgery date has been picked, our surgery schedulers will work with you to schedule any pre-operative appointments, including your Pre-Anesthesia Evaluation and your first post-operative appointment.

Please be sure that we have updated contact information for you, including a phone number, so that you may be reached prior to surgery. It is very important that we have updated demographic, insurance and primary care physician information to allow for prompt insurance authorization and clear communication.

Important Pre-Surgery Requirements

Pre-Operative Clearance

You are responsible for obtaining surgical clearance from all of your child’s specialists prior to surgery. Some specialists will require an office visit prior to giving surgical clearance so be sure you contact your child’s specialist far enough in advance to allow time for appointment if necessary.

All surgical clearances should be faxed to one our surgical coordinators.

Michelle Davis – Tampa

  • Phone: 813-506-5516
  • Fax: 813-506-5595

Diane Bronkema – St. Petersburg

  • Phone: 727-568-6856
  • Fax: 727-568-6858
*If we do not receive clearance, your child’s surgery will be cancelled*

Understanding the Procedure

What Is Spinal Fusion Surgery?

For a child with a badly curved spine (scoliosis or kyphosis), a spinal fusion is the most common surgery done by our group of highly specialized pediatric spine surgeons. A spinal fusion joins vertebrae together to form a single bone. The goal is to improve the curvature of the spine while maintaining balance and making the spine stable.

Your spine is made up of 33 vertebrae that stack to form a column. Each vertebra has a hole in the center, forming a hollow channel to house and protect the spinal cord and cerebral (brain) spinal fluid. Extreme caution is taken to protect the spinal cord. We monitor the function of the nerves throughout the procedure.

  • Putting electrodes on your skin in different places from your head to your toes.
  • Connecting these electrodes to a machine that will let us watch for signs of problems as we place the screws and untwist the spine.
  • Have a neurophysiology technician who understands the nervous system watch
    the spinal cord signals from the machine and alert the surgeon if there are any changes in the signals.

Once the neuromonitoring sensors are set up and all of the pre-surgery preparation is completed, we begin the surgery.

  • We create an incision down the middle of the back. This lets the surgeon better evaluate the muscles and vertebrae that need to be corrected. We try to minimize the length of the incision, but this will depend on the length of the spine that needs to be corrected.
  • Screws made of titanium (a strong, light weight metal) are placed into the pedicles of each vertebra that we will be fusing. Pedicles are two strong wing- shaped pieces of bone on either side of each vertebra. We use CT-guided imaging to ensure the screws are put in the best position.
  • Once all the pedicle screws are in place, the spine is derotated to make the spine straighter.
  • Rods made of various metals are used to help derotate the spine. The screws are then locked to create a strong internal brace while the bones heal.
  • Any bone that was removed during the first portion of the surgery is used to pack in certain areas of the spine to help create the spinal fusion. Occasionally, bone marrow is taken from your pelvis or a donor source if additional bone is needed.
  • The muscle layers and skin are closed with several layers of dissolvable sutures (stitches). There is an adhesive bandage called a Zip Line that is applied to the skin to help keep the incision closed. There are no sutures that will need to be removed.
Spinal fusion step 1 Spinal fusion step 2 Spinal fusion step 3

Once we are finished with the surgery, x-rays taken of your spine will show your new alignment as well as the hardware that we used. Below are before and after photos of two of our patients who underwent a posterior spinal fusion, one for scoliosis and one for kyphosis.

Scoliosis

Scoliosis Before Scoliosis After

Kyphosis

Kyphosis Before Kyphosis After

Potential Concerns to Be Aware Of

Surgical Risks

All surgeries involve some risks, such as the effects of anesthesia, pain, bleeding, infection, scarring, and the need for future surgery. There are also several problems specific to spinal fusion surgery that occur in some children. If you have any questions after reading the information in 1 through 5 below, please call your surgeon.

Like all surgeries, there will be discomfort after the spinal fusion. To help you get better faster, we use medications to fight the discomfort from every different angle. Walking, having regular bowel movements and eating normally are all crucial to managing your pain.

We do everything we can to control bleeding during the surgery including cleaning and recycling your own blood using a Cell Saver machine. On occasion, when blood counts are too low, it can require a blood transfusion.

You will be given antibiotics during surgery and the first 24 hours after surgery to prevent infection. You will also wash with the Hibiclens Skin Wash two days before surgery to prevent infection. Utilizing clean sleepwear and clean sheets are also important for preventing infections. Despite these actions, infection may still occur. Most infections are treated with antibiotics by mouth. Some severe infections may require admission to the hospital to give antibiotics through an IV and occasionally additional surgeries.

There is a risk that you may need a future surgery. A few problems may occur, including infection, a failed screw or rod, or a failed fusion of the bone. Also, we may need to fuse other vertebrae above or below the spine where the first surgery was done.
This risk could result in some degree of weakness and loss of feeling in the legs. There is a risk that the spinal cord could be injured due to the spinal cord not liking its new position. This can affect the spinal cord’s blood supply. We take all precautions to prevent this, including guided pedicle screw placement and continuous spinal cord monitoring. Fortunately, this risk is very low.

Preparing Early for Surgery

Six Weeks Before Surgery

Your child should avoid taking any anti-inflammatory medications such as Motrin, Advil, Aspirin, Ibuprofen, Aleve, etc. However, Tylenol is allowed. It’s crucial to discuss any medications your child may be taking with the surgeon before the surgery.

Ensure we have an updated list of all specialists your child sees, including but not limited to cardiology, pulmonology, neurology/surgery, hematology/oncology, nephrology, etc., to obtain necessary clearance before the surgery date. Failure to obtain surgical clearance may result in surgery being cancelled.

Please inform us if your child has experienced COVID-19, pneumonia, RSV, or MRSA within the last 6 months.

Eat a healthy diet during the period leading up to your surgery. This will help for quicker recovery. Get plenty of exercise so that you are in good shape for surgery.

The Child Life department at Johns Hopkins All Children’s Hospital provides tours and other activities for families seeking more information about their upcoming stay. For further details, please contact them at 727-767-4323.

Housing and Support Services for Families

Ronald McDonald House

Families are stronger when they are together. That’s why Johns Hopkins All Children’s Hospital partners with Ronald McDonald House Charities of Tampa Bay to provide the support and resources families need to stay close to their hospitalized child at little to no cost.

Johns Hopkins All Children’s offers families three Ronald McDonald Houses across campus. All locations offer private rooms, snacks, a television and laundry facilities. Some meals are provided. Hospital transport services are also available 24/7 for all locations.

A room request may be made up to 30 days in advance of a hospital stay. All adults 18 years and older must have a background check before arrival and photo ID upon arrival. To request a room at any of the houses, please call 727-767-7694.

Ronald McDonald House

Final Preparations Before Surgery

Days Leading Up To Surgery

Do not forget to use your preoperative Hibiclens Skin Wash beginning two days before your surgery.

Be sure you have clean sheets for your child’s bed and all areas of the home that they will be recovering in are cleaned. We recommend having a backup set of clean sheets and several pairs of clean sleepwear ready for when your child comes home from the hospital.

Your child will have a pre-anesthesia evaluation at the Johns Hopkins All Children’s Hospital Center for Peri-Operative Optimization (CPO) clinic. See below to learn what that entails:

  • This is typically scheduled 72 hours before the surgery date. This appointment is sometimes scheduled further in advanced depending on your child’s individual medical needs.
  • Your appointment includes evaluation by the anesthesia team, bloodwork and an EKG. Depending on your child’s medical history, additional testing may be required as well.
  • You may also have a CT scan done during this visit. If not, your CT scan will be
    done in the Operating Room on the day of surgery to aid in screw navigation.
  • All CPO appointments are held in the Pre-Operative Unit on the 2nd floor of the hospital.
  • Please arrive on time and sign in at the Pre-Registration station on the 2nd floor, and you will be called back to the Pre-Op Unit.
  • If your CPO appointment is 72 hours before your surgery, you will be told at this
    appointment what time you need to arrive the morning of your surgery and what time you need to stop eating and drinking the night before.
  • If your CPO appointment is more than 72 hours in advance, you will receive a phone call from the hospital the day before surgery to provide the finalized surgery time and discuss detailed pre-operative instructions. If you have not
    received a call by 4:30 PM on the day prior to surgery, please reach out to their
    department at 727-767-8431.
If your child becomes ill or you need to cancel the surgery, please contact our office at 727-568-6856 before the scheduled surgery date. Failure to notify the physician’s office of a cancellation may result in being marked as a NO SHOW. If your child falls ill, please notify our surgery scheduler at least two days before the surgery date. This includes symptoms such as cough, cold, runny/stuffy nose, vomiting, diarrhea, diaper rash, or any other illness.

Steps for Proper Use

Preoperative Hibiclens Skin Wash

Using the Preoperative Hibiclens Skin Wash is a very important step in our effort to prevent surgical infections. You will be provided with a bottle of Hibiclens Skin Wash at your pre-operative appointment in our office. The following instructions should be followed two days before surgery and the night before surgery.

Your child should shower the way they normally do using the Hibiclens Skin Wash instead of their regular soap. Wash especially well from the nape of the neck all the way down to the buttocks.

Do NOT use any lotions, make-up, powders, deodorants or creams. These can interfere with the antiseptic wash and make it difficult for adhesives to stick on the day of surgery.

Dress in clean sleepwear.

Sleep with clean sheets on their bed.

Coverage and Payment Details

Insurance Authorization

It is the parent/legal guardian’s responsibility to make sure we have updated insurance coverage and contact information on each parent or guardian. Please call us if there is any change in the insurance or phone number to reach the patient’s family.

Your insurance coverage will be verified prior to surgery to assess benefits, deductibles, co-insurance, and out-of-pocket expenses, and to initiate authorization. If you have any inquiries regarding your insurance or coverage, please contact the Johns Hopkins All Children’s Financial Clearance department at 727-767-3030.

A surgery deposit may be required before the surgery based on your current insurance benefits. For any inquiries regarding the cost of your child’s surgery, please contact our Financial Estimates department at 727-568-6934.

Please notify your surgeon’s office immediately if there have been any changes to your insurance since your last visit.

Helping You Through the Big Day

The Day of Surgery

We encourage you to only bring essential items the morning of surgery, including:

  • Patient insurance cards
  • Parent/personal identification card such as a driver’s license
  • Copy of Advanced Directive if you have one
  • A list of all of your child’s medications, including dosages and how often they are
    taken
  • “Your Guide to Pediatric Spinal Fusion Surgery” booklet
  • Payment for any deductible or copayment

Wear loose, comfortable clothing. All jewelry must be removed before surgery. This includes: rings, earrings, watches, necklaces, and any other body piercings. Do not use lotions, oils, or perfumes after bathing. Do not apply makeup.

To ensure a smooth check in process, please arrive promptly at the time you were advised of either in your pre-anesthesia evaluation or in your phone call the day prior to surgery.

Your surgery will be performed at Johns Hopkins All Children’s Hospital, located at 501 6th Ave South, St. Petersburg, 33701. Complimentary parking is available in the ACH parking garage adjacent to the Outpatient Care Center.

A bridge on the 2nd floor of the parking garage connects to the Outpatient Care Center and, subsequently, to the 2nd floor of Johns Hopkins All Children’s Hospital. Follow this bridge to reach the hospital.

As you cross the bridge and enter the hospital, you will pass a hallway on your left and then the first lobby/door on your left leads to the Surgical Pre-Registration area. This lobby is marked “H250 Surgical Services”. This is where you will sign in and commence your day with our surgery staff. After signing in, our team will escort you to the Pre-Op Unit.

During Your Child’s Hospital Stay

What to Expect While in the Hospital

Your surgery day is here! This day can be filled with emotion and it is completely normal to feel nervous. This section will walk you through exactly what will happen on the day of surgery and throughout your hospital stay.

  • Once you have checked in with the surgical team, your child will be given an identification bracelet and you will be taken to the pre-op area.
  • Your child will change into a hospital gown and a nurse will take their vital signs and ask you some basic history questions.
  • The pediatric anesthesiologist will meet with you and your child, review their health history and perform a physical exam. This doctor will explain how they will be put to sleep and exactly what to expect.
  • Your surgeon will come say hello and answer any last-minute questions that you may have.
  • Your child will be taken across the hall into the operating room and you will be shown to the family waiting area. Our nurses will be with you every step of the way.
  • Once in the operating room, your child will be put to sleep. Once they wake up, the surgery will be over!
  • As soon as the surgery is over, the anesthesia team will begin waking your child and they will be brought to the PACU (Post Anesthesia Care Unit), the post-op recovery area. They may not remember this step.
  • While your child is starting to wake up, your surgeon will come and speak to you about how the surgery went.
  • You will be shown to the PACU and will be there when your child wakes up.
  • While your child is in the PACU, the nurses will monitor their vital signs, check their nerve function, and give them additional medications for pain.
  • Once your child is fully awake and feeling well, you will be transferred to 7 North, the surgical wing of the hospital. You will have a private room on this floor and will stay there for the remainder of your hospital stay.
  • Note: Occasionally, your child will be brought directly from the operating room to the PICU (Pediatric Intensive Care Unit) for recovery. This typically happens if they have underlying medical conditions that require closer monitoring.
  • Your child will feel sleepy for most of the day. Members of the care team will wake them to check vital signs, assess movement in their legs, and administer medicines.
  • We will remind your child to use an incentive spirometer—a handheld plastic device they breathe into—to help prevent pneumonia. It is very important they exercise their lungs at least once each hour (10 deep breaths every hour).
  • Your child may have some discomfort. This is normal. We will do everything we can to ensure their comfort. They will receive a combination of medications through their IV or by mouth. Please let the nurse know how well the medicines are working.
  • Your child will have a catheter in their bladder. This will be removed as soon as they are able to walk to the bathroom with assistance from their nurse or physical therapist.
  • Your child may experience some nausea or vomiting. This is a normal side effect of anesthesia. Let the nurses know if they are feeling nauseous and they can give medicine to help.
  • Your child may have a small drain on their back to allow blood and extra fluids to drain after surgery. The drain will be removed before you leave the hospital.
  • If it’s not too late in the day, a physical therapist will help your child move out of bed to a chair and begin walking on the day of surgery.
  • Your child is allowed to eat and drink whatever they want as soon as they feel able. Eating a normal diet and staying hydrated is an important part of recovery and pain management. We typically recommend avoiding greasy food on the day of surgery.
  • Each morning, a member of our surgical team will check on your child. They will ask them to move their legs, ensure their pain is being managed well, and check their incision along with any drains or wound vacs that may be in place.
  • Your child may continue to have some nausea. Be sure to tell their nurse so we can provide medicine to help them feel better.
  • We will check your child’s blood levels, specifically hemoglobin, which carries oxygen throughout the body. We want to make sure there is enough in their blood.
  • If your child’s catheter was not removed the day of surgery, it will be removed the following day once they are able to walk to the bathroom with or without assistance.
  • The Pain Management team will check on your child 1–2 times per day to ensure their discomfort is being controlled. They can adjust doses and medications as needed until the best combination is found for your child.
  • The Physical Therapy team will work with your child twice a day. They will help them move safely out of bed, sit, stand, and begin walking with as little discomfort as possible. This is very important—the more they move, the faster their pain will improve and the easier their recovery will be.
  • Remember to have your child use their incentive spirometer breathing device. They should use it 10–20 times per day to ensure their lungs are getting enough oxygen. To help remember, you can set an alarm on your phone or encourage them to use it during TV commercial breaks. Please ask their nurse to show you how to use the device.
  • We will continue to check your child’s vital signs and ask them to score their pain on a scale of 1 (low) to 10 (extreme).
  • We will continue to check the strength and sensation in your child’s legs.
  • Continue to eat and drink as normally as possible.
  • Once your child is tolerating food and drink well, we will begin giving their pain medication by mouth instead of through the IV. This helps transition them to the medications they will take at home and ensures the doses are correct. If their pain is minimal, their drain has been removed, and they have had a bowel movement, you may be discharged home today!
  • A physical therapist will continue to work with your child twice a day, focusing on helping them become more comfortable moving around and walking in the hospital hallways.
  • Continue to use the incentive spirometer as often as possible to keep their lungs healthy.
  • We will take X-rays of your child’s spine on Post-Op Day 1 or 2.
  • We will continue to manage your child’s discomfort with the same medications that they will be taking at home.
  • Your child may become constipated (unable to have a bowel movement), which is commonly caused by pain medicine. If stool softeners are not effective, we may give a suppository (capsule) or an enema (liquid). While no one likes this, it is very important for recovery.
  • If the fluid draining from your child’s incision is low, the drain(s) may be removed.
  • If your child’s pain is minimal, their drain has been removed, and they have had a bowel movement, you may be discharged home today!

In addition to the nursing staff on the unit, the Pediatric Orthopaedic surgery team will care for your child. This team is led by your surgeon and includes physician assistants and resident physicians. The physician assistants and residents report directly to your surgeon, who is the one overseeing all of your child’s care. Our service is on call at the hospital 24 hours a day so we are very easily reached if there are any problems or concerns.

We work very closely with the other departments assisting with your child’s care such as Pain Management and Physical Therapy. We all communicate constantly so we are all on the same page when it comes to your child’s recovery.

Your child’s pain will be assessed regularly on a scale from 0 to 10. Pain assessment is necessary to guide your child’s pain relief. It is essential that they are able to take deep breaths, cough, and move. Prevention or early treatment of mild discomfort is far more effective than trying to treat severe pain. Therefore, we have devised a specialized regimen to stay ahead of their discomfort while limiting the use of narcotics.

We utilize a combination of muscle relaxers, anti-inflammatories, and analgesics (pain relievers) to address their discomfort from all angles. If they need additional pain relief, they will have “as needed” medications available through their IV or by mouth—all you need to do is ask their nurse.

The Pain Management team will work with your child daily to adjust doses or swap medications to find the right combination for their comfort. The medications they receive in the hospital will be the same ones prescribed to take home.

Getting Ready to Go Home

Preparing for Discharge

Your child’s care team will determine when your child is ready to go home, or be discharged. Typically, they will be discharged from the hospital 1–2 days after surgery. However, their discharge date will depend on their progress throughout their hospital stay.

In order to go home, your child must achieve the following:

  • Walk safely with minimal assistance
  • Tolerate solid foods
  • Have control of any pain, nausea, and vomiting
  • Have a bowel movement
  • Have standing X-rays of their spine

We will prescribe your child several medications for them to take at home to keep their pain under control. These will be the same medications they were taking while in the hospital.

  • Your child’s prescriptions will be sent to the pharmacy on the first floor of the hospital. Some prescriptions are difficult to find in pharmacies outside of the hospital, particularly if your child requires liquid medication.
  • The pharmacy hours are 8 a.m. – 8 p.m. Monday through Friday. Be sure to pick up prescriptions before the pharmacy closes, especially if you expect to be discharged over the weekend.
  • You will also receive a schedule to follow for taking medications at home. The Pain Team and your bedside nurse will review all discharge instructions with you.

A parent or legal guardian will need to be present to take your child home if they are under the age of 18. If your child is over 18, they will need to arrange for someone to accompany them home. They will not be released without someone present.

When your child is leaving the hospital, you will receive an After Visit Summary (AVS). This document includes information about your child’s surgery, incision care, pain management, activity level, diet, home care, and other important instructions.

Call your surgeon’s office anytime if you are worried about your child’s recovery. During regular office hours (9:00 a.m. – 5:00 p.m.), call your surgeon’s office directly. After hours, our main office number will connect you with an answering service, who will then connect you with the orthopaedic PA or resident on call.

Call your surgeon’s office immediately if:

  • Your child has a fever higher than 101.5 degrees Fahrenheit.
  • Your child’s incision is red, more painful, or draining fluid.
  • Your child has nausea or vomiting lasting more than 24 hours and cannot keep liquids down.
  • Your child’s pain is worsening and cannot be controlled with the prescribed medicines.
  • If your child is running low on any medicine, call your physician’s office a few days before you run out.
  • Your child is experiencing shortness of breath or difficulty breathing.

After surgery, your child will have a bandage in place over their incision called Aquacel Ag.

  • This bandage may get wet while bathing, but should not be submerged in a bathtub or swimming pool.
  • Avoid allowing shower water to hit the incision directly. Let water run gently over the area instead.
  • Underneath the Aquacel Ag dressing, the wound is sealed with a “ZipLine” dressing.
  • The ZipLine has two long adhesive strips that run along either side of the incision and are connected with small pieces of plastic that look like zip ties. This helps hold the skin together as it heals.
  • Your child should avoid submerging the area under water until cleared by their surgeon, typically at the 3- or 6-week follow-up appointment.

Ten days after your child is discharged, you may remove the Aquacel Ag dressing and ZipLine dressing at home.

  • Peel the dressing starting from one corner in the direction of the incision. Use your other hand to hold the skin around the bandage to prevent pulling.
  • The ZipLine may remain adhered to the skin or lift with the dressing.
  • You should have been given adhesive remover wipes at discharge to help with removing the dressings.
  • Gently wipe at the skin against the adhesive as you slowly peel back the dressings.
  • Once the dressings are removed, you will be able to see the incision. There will not be any sutures, staples, or openings in the wound that require care.

You should protect the incision from the sun for the first year after surgery. We recommend using sunscreen with SPF 45 or higher or UV-protective clothing to cover the incision. The more tanned or sunburned the scar becomes, the less likely it is to return to a normal skin tone. Do not apply any creams, lotions, or oils until cleared by your surgeon.

Once cleared by your surgeon, your child may use topical creams on their incision if desired. We recommend using silicone scar bandages to help the scar heal. These can help collagen fibers realign more effectively and are available online. One brand we often use is Nuvadermis.

It is very normal for the sensation around your child’s incision to be decreased or overly sensitive after surgery. This may include numbness, hypersensitivity, or reduced sensation. These changes can be limited to the incision area or extend across a larger portion of the back. Sensations usually improve gradually over the first few months but may take up to two years. Most patients experience mild residual numbness or decreased sensation directly over the incision that may never fully resolve.

Dressing overview Dressing removal step 1 Dressing removal step 2

It is very important that your child follows all of the activity restrictions that were given to you. Doing too much too quickly can cause problems such as their incision reopening or their hardware breaking, both of which could require a second surgery. Below is a general list of when your child may begin doing certain activities. Do not resume any of these activities until their surgeon has cleared them. If you have questions about any specific activities, please ask your surgeon.

  • Immediately after surgery:
    • No bending at the waist, twisting, or lifting more than 5 lb for the first 6 weeks.
    • Your child may begin to shower normally but should avoid submerging the incision.
    • Your child may eat and drink what they normally do as soon as they are home.
    • Slowly return to normal home activities, including walking at least 3 times a day.
    • It is normal to feel tired; it may take 4–8 weeks before they feel like themselves again. Rest when needed.
    • Your child may feel lightheaded while sitting, standing, or taking a hot shower. If this happens, move slowly and drink plenty of fluids.
    • It is safe to sleep in whatever position is most comfortable.
  • 3 weeks:
    • As long as your child’s incision is fully healed, they may begin submerging their incision in bath tubs and pools. Wait until your surgeon clears you to do so at your first post-op visit.
    • Your child may return to school once they are able to and are no longer needing narcotics or muscle relaxers during the day. For most, this is around 2–4 weeks after surgery.
  • 6 weeks:
    • Your child may begin bending and twisting for normal day-to-day activities and picking up everyday items such as backpacks.
    • They may begin gently swimming and light jogging.
    • They may begin driving as long as they feel comfortable and are no longer taking pain medications or muscle relaxers.
  • 3 months:
    • Your child may begin PE-level activities such as basketball, baseball, and volleyball.
    • They should avoid game-level play such as diving for balls or any contact/collision with other players.
    • They may also begin riding roller coasters.
    • They may begin light exercises at the gym. Start with light weights and gradually increase.
  • 6 months:
    • Your child may return to all physical activity except contact football, rugby, and maximum-effort powerlifting.
  • 1 year:
    • Full return to activities with no restrictions.
  • Do not drive or do things that require your child to be alert while taking the prescribed medication.
  • To reduce nausea (upset stomach): Your child should take pain pills with food and move slowly when changing positions. They will be prescribed nausea medication at the time of discharge to help with this. If nausea does not go away, call your surgeon.
  • To reduce constipation: Drink fluids (water is best), eat foods with fiber (e.g., vegetables, whole grain bread), and take a stool softener and a laxative as needed (see page 24 for more information).
  • If itching occurs from pain medications: It is okay to take Benadryl.

Following surgery, your child’s first post-op appointment will be 2–3 weeks after the surgery date. This appointment should already be scheduled prior to your surgery day.

After that, your child will have appointments at the following intervals:

  • 6 weeks after surgery
  • 3 months after surgery
  • 6 months after surgery
  • 1 year after surgery
  • 2 years after surgery

After the 2-year post-op appointment, no further appointments will need to be scheduled. We will always be happy to see your child in the office for any problems, concerns, or questions.

People have a variety of emotions when facing a major surgery. This is true for both parents and the child having surgery. It is good to look to others for support. Oftentimes family, friends, and people from church will offer to help when they know a loved one is going through a major event. Think of ways you can take them up on that offer to help, such as preparing meals, staying at your home with the other children or pets, or coming to your home to stay with your child while you rest or run errands. Families cope in different ways—time with family and friends, time alone, humor, prayer, communion with nature, meditation, journaling, art, and music.

Some patients and parents find it helpful to connect with another family who has been through the same surgery. We have a list of patients and their families who have gone through spinal fusion surgery and have offered to speak with others about their experience. If you would like to speak with any patients or their families, please notify our office and we will be happy to provide you with contact information.

If you would like to volunteer to share your experience after surgery, please let one of our surgical coordinators know so they can add you to the list.

Typical Recovery Experiences

Common Post-Op Concerns

As your child is recovering at home, we strongly recommend that they take all of their prescribed medications as scheduled instead of waiting for discomfort to return before taking the next dose. When taken on schedule, medications help your child “stay ahead of the pain.” It is much harder to control discomfort once they are already in pain and trying to catch up. As their discomfort improves over the first week or two, they may gradually begin increasing the time between doses.

Note: Please remember that your child just had major spine surgery. While they may not like the idea of taking narcotics and muscle relaxers, these medications are integral to keeping them comfortable during the first week or two of recovery. If they opt not to take them and their discomfort becomes too severe, it will take time to get their pain back under control.

Why is my child having pain in their neck and shoulders?
It is common to experience some discomfort in the neck and shoulders after surgery. The spine is now in a position it is not used to, and the muscles need to adjust to this new alignment. This can lead to muscle pain in the back, neck, and shoulders. Your child should continue with their prescribed pain medications. Once the incision is healed, heat and light massage may also help with neck and shoulder discomfort.

Why does my child have pain or tingling in their thighs?
Some patients report numbness, tingling, or a “burning” pain in the front of their thighs after surgery. This is due to compression on the femoral cutaneous nerve and can be a common side effect. Do not worry—this is temporary and will improve on its own with time. It is not associated with muscle weakness or numbness anywhere else in the legs. However, if your child experiences muscle weakness or numbness in any other part of their legs, ple

It can be normal to have a small amount of drainage from your child’s incision after they go home. You may notice this drainage on the dressing. However, if there is so much drainage that it seeps through the sides of the dressing or drips from the bottom, please contact our office right away.

If the drainage or the incision begins to cause increased pain or develops a foul odor, contact our office immediately. If your child develops redness or the wound begins to open, please take a picture and email it to our nursing staff through the patient portal. Please see page 27 for their contact information.

For instructions on your post-op dressing, please refer to page 19.

After surgery, your child may become constipated for a number of reasons:

  • Lack of movement and mobility
  • Not eating or drinking normally
  • Use of pain medications that decrease motility of the intestinal tract

If this should happen, here are some solutions to help:

  • After discharge from the hospital, your doctor has recommended that your child take a stool softener. Some of these stool softeners include Surfak, Colace, or other generic stool softeners. Please take as directed until bowel movements become regular.
  • If this does not help, your child may need a laxative. Take 1 Dulcolax tablet with an 8 oz glass of water or juice.
  • If after 24 hours your child still has not had a bowel movement, take 1 Dulcolax tablet with 8 oz of water or juice and 1 Dulcolax suppository per rectum.
  • If your child still has not had a bowel movement, please call the office for further instructions.

Some patients are discharged from the hospital with a portable wound vac. A wound vac uses Negative Pressure Wound Therapy to help hold the edges of the incision together and improve wound healing.

  • The wound vac that you were sent home with is a Prevena Plus 125 unit.
  • The unit has a fixed life span of 7 or 14 days. This means that after the set amount of days, the unit will stop working whether the battery still has power or not.
  • The unit runs on a rechargeable battery. The battery typically lasts 9 hours before needing to be charged. You should have received a charger when you were discharged from the hospital.

The unit has several indicator lights on the front that can alert you if there is a problem. There will typically be a beeping sound associated with one of the indicator lights turning on. The image to the right demonstrates what each indicator light means.

There are several simple things you can do at home to troubleshoot any problems you may have with your child’s wound vac.

If there is a block: Check that the tubing is not kinked and that the clamp is open. You may also get this warning if the canister is full. If the canister is full or almost full, please contact our office right away.

If there is a leak: Check that the tubing is properly plugged in. Examine the dressing for any edges that may have peeled back or any places where air may be leaking out. If the dressing is leaking air, you can reinforce any areas of leak with the extra dressings you were provided at discharge.

Wound vac indicator lights
Wound vac troubleshooting

Some Helpful Answers

Frequently Asked Questions

We recommend that your child avoid driving until 6 weeks after surgery. Not only do they need to be off of all narcotics and muscle relaxers, but they need to have full, pain free range of motion of their back and neck to safely be able to drive. Additionally, their reaction time can be slowed after surgery and they need to allow their body enough time to regain their reaction time.

It is safe for you to travel as soon as you feel comfortable doing so. However, sitting for longer periods of time, particularly in a car or uncomfortable plane seat, can be painful. We recommend walking the aisles of the plane frequently and plan for frequent stops to stretch your legs if driving.

Typically, the hardware used in your child’s surgery will not set off metal detectors. They do not need to carry a card stating that they have surgical implants.

No. Most people feel back to normal after 6 weeks and gradually build their strength back as they slowly begin returning back to normal activities.

The hardware used in your child’s surgery is safe for MRI machines. Be sure to notify any provider who may order them an MRI in the future though as a special type of MRI may need to be ordered to prevent artifact (distortions of the image due to the metal implant) that may affect the accuracy of their MRI.

Up to two adults may stay overnight in the hospital room with the patient. You will have a private room in the hospital with a couch and a cot can be brought in by request. Any visitors must check-in at the main registration desk of the hospital.

Help When You Need It

Important Contacts

Michelle and Diane will be your point of contact until the time of your surgery.

  • During business hours:
    Phone: 813-879-2663 or 727-898-2663
    Select option 2 to speak to a nurse.
  • After business hours:
    Phone: 813-879-2663 or 727-898-2663
    Our answering service will answer your call and then page the on-call resident or PA as needed.
  • Patient portal:
    You may also ask non-urgent medical questions via our patient portal. Select “General Nursing Questions” as the message type.
FMLA and school notes information
COSSA information All Children’s Hospital records
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